I am at a loss for words as I try to begin this post. Liam turned two on March 17. We were told how unlikely it would be to get time with Liam. As we prepared for labor with Liam, I packed my hospital bag with a stuffed bear and blanket that had Liam’s name on it, gifted to me by family, so I would not have to leave the hospital empty handed post-birth. There’s been so many difficulty moments the past two years, but our hearts remain full. Despite the difficult moments, the sweet moments with Liam are worth it all.
The visual Dylan and I use to explain Liam’s medical complexities is balancing spinning glass plates on poles- trying our hardest to keep the frailness of what we’ve been given to not drop and shatter. Balancing so much at once. It’s a lot of time and energy- phone calls, appointments, medical equipment, leaving the house with multiple bags in preparation for an emergency that could happen (and have happened) in a blink.
Specifically from year 1 to 2, Liam has had two surgeries and two unexpected PICU stays. In our recent PICU stay a few weeks after his second birthday, Liam recovered from sepsis. He continues to blow everyone away with his strength. We’ve called him Liam the Lion since before birth- he truly is lionhearted! He took his first trip out of the state to California. He enjoyed the sunshine on his face and the ocean water on his toes. The memories during this vacation will forever be stamped onto our hearts.
It’s hard to type out updates on Liam’s life in great detail. Every week holds something different- some problems unique to that week, some consistent weekly battles. Despite the hardships, Liam is so easy to love. He LOVES to be loved- held, kissed, rocked, being with his siblings. His love language is physical touch, and there’s no place he’d rather be than in someone’s arms.
Below is pictures from his second birthday party, and a video to give everyone a glimpse into our life with Liam.
As I wrote in my last post, we continue to fight for the posture of not staring at the ever-changing circumstances, but staring into the face of Christ and finding rest in Him.
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